JORNADA Investigación en Enfermedades Genéticas Raras. Una Necesidad Social

422 comentarios / Por /

Lugar: Delegación Territorial de la ONCE en Valencia (Gran Vía Ramón y Cajal, 13)
Fecha de celebración: 25 de noviembre de 2013
Inscripción: Enviar correo electrónico a eventos@ciberer.es (indicando nombre, apellidos, institución y teléfono de contacto)

PROGRAMA:
10:00-10:15 Bienvenida
José M. Millán (Facultativo Unidad de Genética del Hospital U. La Fe)
Almudena Amaya (Presidenta de FEDER Comunidad Valenciana)

10:15-12:45 Sesión 1. Investigación Genética y Epidemiológica
Moderadora: Carmen Ayuso (Directora Científica IIS-Fundación Jiménez Díaz)

10:15-10:45 Biobancos. Javier García del Pozo (Jefe de Área ISCIII)

10:45-11:15 Registros. Oscar Zurriaga (Jefe del Registro de ER de la Comunidad Valenciana, Centro Superior de Investigación en Salud Pública-CSISP)

11.15-11:45 Investigación básica y genética. Francesc Palau (Director Científico CIBERER, Responsable del Programa de ER y Genéticas del Centro de Investigación Príncipe Felipe-CIPF)

11:45-12:15 Pausa Café

12:45-14:00 Sesión 2. Investigación Clínica. Los puntos de vista de los agentes
Moderador: Rafael Dal-Ré (Asesor científico, Programa de Investigación Clínica, Fundació Pasqual Maragall)

Ponentes:
• Juan J. Vilchez. Jefe del Servicio de Neurología, Hospital U. La Fe
• César Hernández. Director Departamento de Medicamentos de Uso Humano, Agencia Española del Medicamento y Productos Sanitarios
• Jordi Cruz Villalba. Miembro de la Junta directiva de FEDER
• Fernando Royo. VP International Government Affairs, Genzyme. Presidente de la Fundación Genzyme

14:00 Conclusiones y Despedida:
Alberto Durán. Vicepresidente, Fundación ONCE

JORNADA
Investigación en Enfermedades Genéticas Raras.
Una Necesidad Social

422 comentarios en “JORNADA Investigación en Enfermedades Genéticas Raras. Una Necesidad Social”

  29. hume health promo code

    An outstanding share! I have just forwarded this onto a co-worker who has been doing a little homework on this. And he in fact bought me dinner due to the fact that I discovered it for him… lol. So let me reword this…. Thank YOU for the meal!! But yeah, thanx for spending time to talk about this matter here on your web page.

  37. one88.party

    I blog quite often and I genuinely thank you for your content. The article has truly peaked my interest. I am going to bookmark your site and keep checking for new information about once a week. I subscribed to your RSS feed as well.

  58. Porn Video

    Your style is really unique in comparison to other people I have read stuff from. I appreciate you for posting when you have the opportunity, Guess I’ll just bookmark this blog.

  90. Jesseorart

    Tried the https://www.cornbreadhemp.com/collections/thc-gummies from Cornbread Hemp. I went with the thoroughly spectrum ones — the ones with a hardly THC. Took sole before bed. The sample is fine, kind-hearted of earthy but not gross. After about an hour, I felt more relaxed. Not knocked forbidden or anything, honest tranquil enough to downgrade asleep without overthinking. No grogginess in the morning, which I was worried about. They’re not bargain-priced, but if you’ve had trouble unwinding at darkness, this puissance help

  115. porn

    Hello there! I could have sworn I’ve been to this site before but after going through a few of the posts I realized it’s new to me. Anyways, I’m certainly pleased I discovered it and I’ll be book-marking it and checking back frequently.

  126. porn

    Having read this I believed it was very informative. I appreciate you spending some time and energy to put this information together. I once again find myself personally spending a lot of time both reading and posting comments. But so what, it was still worth it!

  177. xxx mom son fuck HD movies

    I blog frequently and I truly appreciate your content. This article has truly peaked my interest. I will take a note of your blog and keep checking for new details about once per week. I opted in for your Feed too.

  187. Wendolyn Janise

    Your style is really unique in comparison to other folks I’ve read stuff from. Thank you for posting when you have the opportunity, Guess I’ll just bookmark this web site.

  196. frequency

    An intriguing discussion is definitely worth comment. I do think that you ought to write more about this subject matter, it might not be a taboo matter but typically people do not discuss such subjects. To the next! Best wishes!

  214. Jessiejip

    Tried the Joy Organics cbd thc tincture into the open air of curiosity. Taste is trim, not too sweet. I took one in the afternoon when I was perception kinda off — not lousy, principled naughty energy. Far 30–40 mins later, I felt a trace more level. Not like a enormous market, but reasonably to notice. No preternatural crash after. Don’t expect magic, but in support of me, it helped shock a resemble the limit off without feeling zoned out.

  235. pornhub

    After checking out a number of the articles on your site, I seriously appreciate your way of blogging. I saved as a favorite it to my bookmark website list and will be checking back in the near future. Please check out my web site as well and let me know your opinion.

  245. Hong Loth

    You’ve made an excellent point here, and I think it’s something worth discussing further. There are several articles on fm88 that offer a similar perspective and are definitely worth reading.

  252. Man88

    An impressive share! I’ve just forwarded this onto a colleague who has been doing a little homework on this. And he actually ordered me breakfast simply because I discovered it for him… lol. So let me reword this…. Thank YOU for the meal!! But yeah, thanx for spending time to talk about this matter here on your internet site.

  275. Anton Blanscet

    I think you’ve made an excellent point here. I recently came across an article on hong88 that dives deeper into this subject, and it offers some great perspectives.

  278. learn more

    I was excited to find this site. I wanted to thank you for ones time just for this fantastic read!! I definitely enjoyed every part of it and i also have you bookmarked to check out new things in your site.

  285. oxbet

    Way cool! Some very valid points! I appreciate you writing this write-up and the rest of the site is really good.

  286. da88

    I want to to thank you for this good read!! I definitely loved every bit of it. I have got you book-marked to look at new stuff you post…

  317. porn

    Having read this I thought it was really enlightening. I appreciate you taking the time and effort to put this short article together. I once again find myself personally spending a lot of time both reading and posting comments. But so what, it was still worth it!

  356. erecprime

    I truly love your site.. Excellent colors & theme. Did you make this amazing site yourself? Please reply back as I’m hoping to create my very own website and want to learn where you got this from or exactly what the theme is called. Cheers.

  359. Anime

    Spot on with this write-up, I absolutely think this site needs much more attention. I’ll probably be back again to see more, thanks for the info!

  361. porn

    You should take part in a contest for one of the finest blogs on the web. I’m going to highly recommend this web site!

  365. hiếp dâm

    I’m impressed, I have to admit. Seldom do I come across a blog that’s equally educative and amusing, and let me tell you, you have hit the nail on the head. The problem is something not enough men and women are speaking intelligently about. I am very happy I found this during my search for something concerning this.

  366. Phim Sex mới nhất

    Having read this I thought it was extremely enlightening. I appreciate you spending some time and energy to put this short article together. I once again find myself spending way too much time both reading and posting comments. But so what, it was still worthwhile!

  371. Micah Bowerman

    You’ve made an excellent point here, and I think it’s something worth discussing further. There are several articles on soc99 that offer a similar perspective and are definitely worth reading.

  372. Phim người lớn

    You are so interesting! I don’t think I’ve read through anything like that before. So nice to find another person with a few original thoughts on this topic. Really.. thanks for starting this up. This website is one thing that is required on the web, someone with a little originality.

  375. porn

    Hi there, I think your blog could be having internet browser compatibility problems. Whenever I look at your web site in Safari, it looks fine however when opening in IE, it has some overlapping issues. I simply wanted to give you a quick heads up! Apart from that, fantastic blog!

  378. 인천 쓰리노

    I’m amazed, I have to admit. Rarely do I come across a blog that’s both equally educative and entertaining, and without a doubt, you have hit the nail on the head. The problem is something that too few folks are speaking intelligently about. I’m very happy I stumbled across this during my search for something regarding this.

  383. 68 Game Bài

    I’m amazed, I have to admit. Rarely do I encounter a blog that’s both equally educative and engaging, and without a doubt, you’ve hit the nail on the head. The problem is an issue that too few people are speaking intelligently about. I am very happy that I found this in my search for something concerning this.

  386. igenics sale

    This blog is not just about the content, but also the community it fosters I’ve connected with so many like-minded individuals here

  389. 7club

    I want to to thank you for this good read!! I certainly loved every bit of it. I have got you book marked to check out new stuff you post…

  416. chiropractor singapore

    Hello there, I do believe your site could possibly be having web browser compatibility problems. When I take a look at your blog in Safari, it looks fine however when opening in IE, it has some overlapping issues. I merely wanted to give you a quick heads up! Other than that, wonderful site.

Deja un comentario

Tu dirección de correo electrónico no será publicada. Los campos obligatorios están marcados con *

Scroll al inicio
Powered by  GDPR Cookie Compliance
Resumen de privacidad

Esta web utiliza cookies para que podamos ofrecerte la mejor experiencia de usuario posible. La información de las cookies se almacena en tu navegador y realiza funciones tales como reconocerte cuando vuelves a nuestra web o ayudar a nuestro equipo a comprender qué secciones de la web encuentras más interesantes y útiles.

Puedes revisar nuestra página de privacidad y cookies.