JORNADA Investigación en Enfermedades Genéticas Raras. Una Necesidad Social

Lugar: Delegación Territorial de la ONCE en Valencia (Gran Vía Ramón y Cajal, 13)
Fecha de celebración: 25 de noviembre de 2013
Inscripción: Enviar correo electrónico a eventos@ciberer.es (indicando nombre, apellidos, institución y teléfono de contacto)

PROGRAMA:
10:00-10:15 Bienvenida
José M. Millán (Facultativo Unidad de Genética del Hospital U. La Fe)
Almudena Amaya (Presidenta de FEDER Comunidad Valenciana)

10:15-12:45 Sesión 1. Investigación Genética y Epidemiológica
Moderadora: Carmen Ayuso (Directora Científica IIS-Fundación Jiménez Díaz)

10:15-10:45 Biobancos. Javier García del Pozo (Jefe de Área ISCIII)

10:45-11:15 Registros. Oscar Zurriaga (Jefe del Registro de ER de la Comunidad Valenciana, Centro Superior de Investigación en Salud Pública-CSISP)

11.15-11:45 Investigación básica y genética. Francesc Palau (Director Científico CIBERER, Responsable del Programa de ER y Genéticas del Centro de Investigación Príncipe Felipe-CIPF)

11:45-12:15 Pausa Café

12:45-14:00 Sesión 2. Investigación Clínica. Los puntos de vista de los agentes
Moderador: Rafael Dal-Ré (Asesor científico, Programa de Investigación Clínica, Fundació Pasqual Maragall)

Ponentes:
• Juan J. Vilchez. Jefe del Servicio de Neurología, Hospital U. La Fe
• César Hernández. Director Departamento de Medicamentos de Uso Humano, Agencia Española del Medicamento y Productos Sanitarios
• Jordi Cruz Villalba. Miembro de la Junta directiva de FEDER
• Fernando Royo. VP International Government Affairs, Genzyme. Presidente de la Fundación Genzyme

14:00 Conclusiones y Despedida:
Alberto Durán. Vicepresidente, Fundación ONCE

JORNADA
Investigación en Enfermedades Genéticas Raras.
Una Necesidad Social

30 comentarios en “JORNADA Investigación en Enfermedades Genéticas Raras. Una Necesidad Social”

  1. Reading your article helped me a lot and I agree with you. But I still have some doubts, can you clarify for me? I’ll keep an eye out for your answers.

  2. I have read your article carefully and I agree with you very much. This has provided a great help for my thesis writing, and I will seriously improve it. However, I don’t know much about a certain place. Can you help me?

  3. Cool. I spent a long time looking for relevant content and found that your article gave me new ideas, which is very helpful for my research. I think my thesis can be completed more smoothly. Thank you.

  4. Appreciating the dedication you put into your site and in depth information you provide. It’s great to come across a blog every once in a while that isn’t the same outdated rehashed material. Wonderful read! I’ve saved your site and I’m including your RSS feeds to my Google account.

  5. Do you mind if I quote a couple of your posts as long as I provide credit and sources back to your website? My website is in the very same area of interest as yours and my visitors would truly benefit from a lot of the information you present here. Please let me know if this okay with you. Regards!

  6. You’re so cool! I don’t think I have read anything like this before. So great to find somebody with a few original thoughts on this topic. Really.. thank you for starting this up. This website is something that is needed on the web, someone with some originality!

  7. It’s a shame you don’t have a donate button! I’d most certainly donate to this brilliant blog! I suppose for now i’ll settle for book-marking and adding your RSS feed to my Google account. I look forward to brand new updates and will talk about this blog with my Facebook group. Chat soon!

  8. Does your site have a contact page? I’m having a tough time locating it but, I’d like to send you an e-mail. I’ve got some suggestions for your blog you might be interested in hearing. Either way, great website and I look forward to seeing it develop over time.

  9. Hello there! This is kind of off topic but I need some help from an established blog. Is it tough to set up your own blog? I’m not very techincal but I can figure things out pretty fast. I’m thinking about setting up my own but I’m not sure where to start. Do you have any tips or suggestions? With thanks

  10. Преимущество строительства автомойки под ключ заключается в оперативности запуска проекта и минимизации забот для заказчика, так как исполнитель берет на себя все этапы работ.

  11. Hello there, You have done an excellent job. I will definitely digg it and personally recommend to my friends. I am sure they will be benefited from this site.

  12. I’m not sure why but this web site is loading extremely slow for me. Is anyone else having this issue or is it a problem on my end? I’ll check back later and see if the problem still exists.

Deja un comentario

Tu dirección de correo electrónico no será publicada. Los campos obligatorios están marcados con *

Scroll al inicio