Día Mundial de las Enfermedades Raras – V Jornada “Investigar es Avanzar “

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Por quinto año consecutivo, el CIBERER organiza la Jornada «Investigar es Avanzar» en las fechas previas al Día Mundial de las Enfermedades Raras. Investigadores y afectados presentarán los beneficios de su colaboración el próximo miércoles 27 de febrero por la mañana en el centro de Madrid. En la jornada, se abordarán los avances en el síndrome de Lowe, las patologías neuromusculares, el asesoramiento genético o las anomalías congénitas. Se presentará también la colaboración del CIBERER y FEDER, con la intervención de varios representantes de la federación de afectados. Además, 2013 ha sido declarado como el Año Español de las Enfermedades Raras. Podéis inscribiros de manera gratuita desde el mail eventos@ciberer.es o llamando al teléfono 96 339 47 89.

Podéis ver el programa del evento aquí.

90 comentarios en “Día Mundial de las Enfermedades Raras – V Jornada “Investigar es Avanzar “”

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