Sólo Quedan 29 días para el Día Mundial de las Enfermedades Raras

Queridas Asociaciones:

Quedan 29 días para el Día Mundial de las Enfermedades Raras y desde FEDER os queremos dar las GRACIAS. Ya hemos recibido la información de algunas asociaciones sobre actividades enmarcadas en el Día Mundial de Enfermedades Raras. Desde FEDER daremos difusión a todas vuestras acciones. Unidos, vamos a lograr que el mes de febrero sea el mes de la esperanza por las personas con enfermedades raras.

Queremos seguir animándoos para que os unáis a esta Campaña de Esperanza. Os contamos cómo hacerlo:

1)   MAREA DE LA ESPERANZA –Organiza un acto de Sensibilización por el Día Mundial de las Enfermedades Raras: ¿Tienes un acto programado para el mes de febrero? Te invitamos a que lo enmarques dentro del Día Mundial. Es muy fácil, tan sólo incluye el logotipo del Día Mundial en el material del acto y súmate a la marea de esperanza – Pincha aquí para más información

2)   Descarga el material de Campaña: FEDER pone a tu disposición todo el material de campaña de manera Online – ¿Te gustaría que tu firma de correo fuera del Día Mundial? ¿O poner un banner en la web de tu asociación del Día Mundial? Te invitamos a que visites su zona de Descarga de Material de Campaña pulsando aquí.

3)   Accede a la web de FEDER y conoce toda la información por el Día Mundial– www.enfermedades-raras.org

4)   ¿Tienes alguna duda?¿Quieres contarnos que vas a hacer por el Día Mundial?

Fuente: Dpto. de Comunicación de FEDER  –  comunicacion@enfermedades-raras.org

733 comentarios en “Sólo Quedan 29 días para el Día Mundial de las Enfermedades Raras”

  1. It’s difficult to find educated people on this subject, but you seem like you know what you’re talking about! Thanks

  2. An interesting dialogue is worth comment. I believe that it is best to write extra on this subject, it may not be a taboo topic but typically persons are not sufficient to talk on such topics. To the next. Cheers

  3. An additional issue is that video gaming became one of the all-time main forms of fun for people of nearly every age. Kids engage in video games, and adults do, too. The XBox 360 is probably the favorite games systems for many who love to have hundreds of games available to them, and who like to relax and play live with people all over the world. Thank you for sharing your thinking.

  4. I was curious if you ever thought of changing the layout of your site? Its very well written; I love what youve got to say. But maybe you could a little more in the way of content so people could connect with it better. Youve got an awful lot of text for only having 1 or 2 pictures. Maybe you could space it out better?

  5. Nearly all of what you articulate is astonishingly accurate and that makes me wonder why I hadn’t looked at this with this light before. This particular piece really did switch the light on for me personally as far as this subject goes. But there is 1 point I am not necessarily too comfy with so whilst I try to reconcile that with the main idea of your position, let me see exactly what the rest of your subscribers have to point out.Nicely done.

  6. Right here is the perfect web site for anybody who would like to understand this topic. You know so much its almost hard to argue with you (not that I actually would want to…HaHa). You definitely put a new spin on a topic that’s been discussed for ages. Great stuff, just excellent.

  7. It is perfect time to make some plans for the long run and it’s time to be happy. I’ve read this publish and if I may just I desire to recommend you few attention-grabbing issues or suggestions. Maybe you can write next articles referring to this article. I desire to learn more issues about it!

  8. Great beat ! I would like to apprentice whilst you amend your website, how could i subscribe for a weblog website? The account aided me a appropriate deal. I had been tiny bit familiar of this your broadcast provided vibrant clear concept

  9. Its like you read my mind! You seem to know so much about this, like you wrote the book in it or something. I think that you can do with a few pics to drive the message home a bit, but other than that, this is great blog. An excellent read. I will definitely be back.

  10. After going over a number of the blog posts on your site, I really like your technique of writing a blog. I saved it to my bookmark website list and will be checking back soon. Take a look at my website too and tell me your opinion.

  11. I’m so happy to read this. This is the kind of manual that needs to be given and not the accidental misinformation that’s at the other blogs. Appreciate your sharing this best doc.

  12. You made some decent points there. I appeared on the web for the problem and found most individuals will go together with along with your website.

  13. I’m impressed, I must say. Rarely do I encounter a blog that’s equally educative and amusing, and let me tell you, you’ve hit the nail on the head. The problem is something which too few men and women are speaking intelligently about. I am very happy that I found this in my hunt for something regarding this.

  14. I have really learned new things through your blog site. One other thing I would like to say is the fact that newer computer operating systems are inclined to allow far more memory to get used, but they likewise demand more storage simply to operate. If one’s computer can’t handle a lot more memory and the newest software requires that ram increase, it usually is the time to buy a new Personal computer. Thanks

  15. Greetings from Idaho! I’m bored at work so I decided to check out your blog on my iphone during lunch break. I love the knowledge you present here and can’t wait to take a look when I get home. I’m amazed at how fast your blog loaded on my phone .. I’m not even using WIFI, just 3G .. Anyways, fantastic blog!

  16. Hi there! This is my first visit to your blog! We are a collection of volunteers and starting a new project in a community in the same niche. Your blog provided us useful information to work on. You have done a extraordinary job!

  17. Nice blog here! Also your website loads up very fast! What web host are you using? Can I get your affiliate link to your host? I wish my website loaded up as quickly as yours lol

  18. Hey there! I simply would like to give you a big thumbs up for the great information you’ve got here on this post. I’ll be coming back to your blog for more soon.

  19. Hi there, just became aware of your blog through Google, and found that it’s really informative. I am going to watch out for brussels. I will appreciate if you continue this in future. Numerous people will be benefited from your writing. Cheers!

  20. Based on my study, after a in foreclosure home is bought at a sale, it is common to the borrower in order to still have a remaining balance on the mortgage. There are many loan merchants who seek to have all costs and liens paid back by the next buyer. Nonetheless, depending on specific programs, polices, and state laws and regulations there may be a few loans which aren’t easily handled through the exchange of personal loans. Therefore, the duty still falls on the client that has had his or her property in foreclosure. Thanks for sharing your notions on this web site.

  21. After checking out a handful of the blog articles on your web site, I seriously like your way of writing a blog. I book marked it to my bookmark webpage list and will be checking back in the near future. Please visit my web site too and tell me what you think.

  22. Good day very nice website!! Man .. Excellent .. Amazing .. I’ll bookmark your website and take the feeds additionally?I’m glad to search out so many useful info right here within the put up, we need develop more techniques on this regard, thanks for sharing. . . . . .

  23. magnificent issues altogether, you just gained a emblem new reader. What might you recommend in regards to your publish that you made a few days ago? Any certain?

  24. I really like what you guys are up too. This kind of clever work and reporting! Keep up the fantastic works guys I’ve you guys to our blogroll.

  25. Hello! I know this is kinda off topic but I was wondering which blog platform are you using for this site? I’m getting tired of WordPress because I’ve had problems with hackers and I’m looking at options for another platform. I would be awesome if you could point me in the direction of a good platform.

  26. Thanks for the strategies you discuss through this website. In addition, several young women who become pregnant never even try and get medical insurance because they dread they probably would not qualify. Although a few states currently require that insurers offer coverage no matter what about the pre-existing conditions. Charges on these guaranteed plans are usually higher, but when considering the high cost of health care bills it may be your safer route to take to protect your own financial potential.

  27. Outstanding post however I was wondering if you could write a litte more on this topic? I’d be very thankful if you could elaborate a little bit more. Appreciate it!

  28. I have been browsing online greater than three hours these days, yet I by no means discovered any interesting article like yours. It is pretty value sufficient for me. In my view, if all webmasters and bloggers made just right content as you probably did, the internet will likely be a lot more useful than ever before.

  29. I have come across that nowadays, more and more people are being attracted to digital cameras and the subject of images. However, really being a photographer, you must first commit so much time period deciding the exact model of dslr camera to buy along with moving store to store just so you could buy the most inexpensive camera of the brand you have decided to select. But it does not end there. You also have to take into account whether you can purchase a digital digital camera extended warranty. Thanks a lot for the good recommendations I gathered from your weblog.

  30. I should say also believe that mesothelioma cancer is a uncommon form of many forms of cancer that is typically found in all those previously subjected to asbestos. Cancerous cellular material form inside mesothelium, which is a protective lining which covers many of the body’s areas. These cells usually form within the lining on the lungs, abdominal area, or the sac that really encircles one’s heart. Thanks for discussing your ideas.

  31. This excellent website really has all of the info I needed concerning this subject and didn’t know who to ask.

  32. http://www.mybudgetart.com.au is Australia’s Trusted Online Wall Art Canvas Prints Store. We are selling art online since 2008. We offer 1000+ artwork designs, up-to 50 OFF store-wide, Budget Pricing Wall Prints starts from $70, FREE Delivery Australia & New Zealand and World-wide shipping. Order Online your canvas prints today at mybudgetart.com.au

  33. http://www.mybudgetart.com.au is Australia’s Trusted Online Wall Art Canvas Prints Store. We are selling art online since 2008. We offer 1000+ artwork designs, up-to 50 OFF store-wide, Budget Pricing Wall Prints starts from $70, FREE Delivery Australia & New Zealand and World-wide shipping. Order Online your canvas prints today at mybudgetart.com.au

  34. Magnificent website. A lot of useful information here. I?m sending it to some friends ans also sharing in delicious. And obviously, thanks for your sweat!

  35. Hi there, You have done an excellent job. I?ll certainly digg it and personally recommend to my friends. I am sure they’ll be benefited from this site.

  36. Good post however , I was wondering if you could write a litte more on this topic? I’d be very grateful if you could elaborate a little bit further. Cheers!

  37. kashpo napolnoe_boKt

    кашпо для цветов напольное вазон kashpo-napolnoe-rnd.ru – кашпо для цветов напольное вазон .

  38. Hey just wanted to give you a quick heads up. The text in your post seem to be running off the screen in Ie. I’m not sure if this is a formatting issue or something to do with web browser compatibility but I figured I’d post to let you know. The style and design look great though! Hope you get the problem solved soon. Many thanks

  39. I’m not sure exactly why but this blog is loading very slow for me. Is anyone else having this issue or is it a problem on my end? I’ll check back later and see if the problem still exists.

  40. Yet another issue is that video games can be serious in nature with the main focus on learning rather than enjoyment. Although, there’s an entertainment aspect to keep your kids engaged, each one game will likely be designed to work on a specific expertise or area, such as numbers or research. Thanks for your publication.

  41. Footprint Network article – “Mantle‑Bridge Overview”: Offers a clear breakdown of the bridge’s architecture, token types, and direction‑specific flows, ideal for intuitive bridge performance understanding

  42. Dune – “Paraswap” dashboard: Monitors swap volumes, transaction counts, and gas usage trends across chains—perfect for spotting usage spikes or slippage patterns

  43. Developer-friendly API suite enables dApps and wallets to fetch token prices and execute ETH/ERC-20 swaps seamlessly

  44. I quite like reading through an article that will make men and women think. Also, thanks for allowing for me to comment.

  45. The subsequent time I read a blog, I hope that it doesnt disappoint me as much as this one. I imply, I know it was my option to learn, however I truly thought youd have one thing fascinating to say. All I hear is a bunch of whining about one thing that you could possibly repair for those who werent too busy in search of attention.

  46. As I site possessor I believe the content material here is rattling excellent , appreciate it for your hard work. You should keep it up forever! Best of luck.

  47. Having read this I thought it was very enlightening. I appreciate you taking the time and effort to put this content together. I once again find myself personally spending a lot of time both reading and leaving comments. But so what, it was still worthwhile!

  48. Please let me know if you’re looking for a article writer for your site. You have some really good posts and I think I would be a good asset. If you ever want to take some of the load off, I’d really like to write some articles for your blog in exchange for a link back to mine. Please blast me an e-mail if interested. Regards!

  49. Thanks for your posting. One other thing is that often individual states in the United states of america have their particular laws that affect house owners, which makes it quite hard for the the nation’s lawmakers to come up with a brand new set of rules concerning foreclosures on householders. The problem is that each state has got own legal guidelines which may have impact in an adverse manner in relation to foreclosure insurance plans.

  50. This web site is really a stroll-by way of for the entire information you needed about this and didn?t know who to ask. Glimpse right here, and also you?ll definitely uncover it.

  51. An outstanding share! I’ve just forwarded this onto a co-worker who has been conducting a little homework on this. And he actually bought me breakfast because I found it for him… lol. So let me reword this…. Thank YOU for the meal!! But yeah, thanks for spending time to talk about this subject here on your site.

  52. hi!,I really like your writing very a lot! proportion we communicate extra about your post on AOL? I need a specialist on this area to resolve my problem. May be that is you! Having a look forward to peer you.

  53. Hi would you mind letting me know which webhost you’re utilizing? I’ve loaded your blog in 3 completely different browsers and I must say this blog loads a lot faster then most. Can you recommend a good internet hosting provider at a honest price? Thanks a lot, I appreciate it!

  54. http://www.factorytapestry.com is a Trusted Online Wall Hanging Tapestry Store. We are selling online art and decor since 2008, our digital business journey started in Australia. We sell 100 made-to-order quality printed soft fabric tapestry which are just too perfect for decor and gifting. We offer Up-to 50 percent OFF Storewide Sale across all the Wall Hanging Tapestries. We provide Fast Shipping USA, CAN, UK, EUR, AUS, NZ, ASIA and Worldwide Delivery across 100+ countries.

  55. http://www.factorytapestry.com is a Trusted Online Wall Hanging Tapestry Store. We are selling online art and decor since 2008, our digital business journey started in Australia. We sell 100 made-to-order quality printed soft fabric tapestry which are just too perfect for decor and gifting. We offer Up-to 50 percent OFF Storewide Sale across all the Wall Hanging Tapestries. We provide Fast Shipping USA, CAN, UK, EUR, AUS, NZ, ASIA and Worldwide Delivery across 100+ countries.

  56. Hi, I do think this is an excellent site. I stumbledupon it 😉 I may revisit yet again since i have book-marked it. Money and freedom is the greatest way to change, may you be rich and continue to guide other people.

  57. Thanks for some other wonderful article. Where else may just anybody get that type of info in such a perfect method of writing? I’ve a presentation subsequent week, and I am at the search for such info.

  58. I’ve been surfing online more than 3 hours today, yet I never found any interesting article like yours. It?s pretty worth enough for me. In my view, if all web owners and bloggers made good content as you did, the internet will be much more useful than ever before.

  59. I have seen that costs for online degree pros tend to be a terrific value. For example a full Bachelors Degree in Communication with the University of Phoenix Online consists of Sixty credits from $515/credit or $30,900. Also American Intercontinental University Online provides a Bachelors of Business Administration with a overall school requirement of 180 units and a tuition fee of $30,560. Online studying has made getting the degree far less difficult because you might earn your own degree in the comfort of your dwelling place and when you finish working. Thanks for all tips I have learned through the blog.

  60. That is really attention-grabbing, You are an excessively professional blogger. I have joined your rss feed and look ahead to in the hunt for extra of your magnificent post. Also, I’ve shared your site in my social networks!

  61. excellent post, very informative. I wonder why the other experts of this sector don’t notice this. You should continue your writing. I am confident, you’ve a great readers’ base already!

  62. A lot of whatever you assert happens to be astonishingly accurate and that makes me ponder the reason why I had not looked at this with this light before. This particular piece truly did turn the light on for me personally as far as this particular subject matter goes. But there is one issue I am not too comfy with and whilst I make an effort to reconcile that with the actual core theme of your point, let me see exactly what the rest of your visitors have to say.Very well done.

  63. I know of the fact that now, more and more people are being attracted to cameras and the industry of photography. However, like a photographer, it’s important to first invest so much of your time deciding the model of video camera to buy plus moving store to store just so you could buy the lowest priced camera of the brand you have decided to choose. But it would not end generally there. You also have to take into account whether you should obtain a digital digicam extended warranty. Many thanks for the good points I gathered from your weblog.

  64. My brother recommended I might like this blog. He was entirely right. This post truly made my day. You can not imagine just how much time I had spent for this info! Thanks!

  65. The very next time I read a blog, I hope that it doesn’t fail me as much as this particular one. After all, I know it was my choice to read, however I actually thought you would probably have something helpful to talk about. All I hear is a bunch of complaining about something that you could fix if you were not too busy looking for attention.

  66. Thanks for your submission. I would also like to comment that the first thing you will need to complete is check if you really need credit improvement. To do that you will need to get your hands on a copy of your credit rating. That should not be difficult, since government mandates that you are allowed to be issued one no cost copy of the credit report yearly. You just have to consult the right individuals. You can either look at website for that Federal Trade Commission as well as contact one of the leading credit agencies directly.

  67. Hi! Quick question that’s totally off topic. Do you know how to make your site mobile friendly? My weblog looks weird when browsing from my iphone4. I’m trying to find a template or plugin that might be able to fix this issue. If you have any suggestions, please share. With thanks!

  68. One more thing. I do believe that there are a lot of travel insurance sites of reputable companies that allow you to enter a trip details and find you the quotes. You can also purchase the actual international holiday insurance policy on-line by using your own credit card. All you should do would be to enter your own travel particulars and you can be aware of the plans side-by-side. Only find the system that suits your capacity to pay and needs and after that use your bank credit card to buy it. Travel insurance on the web is a good way to search for a respected company regarding international holiday insurance. Thanks for giving your ideas.

  69. A powerful share, I simply given this onto a colleague who was doing just a little analysis on this. And he in truth bought me breakfast as a result of I found it for him.. smile. So let me reword that: Thnx for the treat! But yeah Thnkx for spending the time to discuss this, I feel strongly about it and love studying extra on this topic. If attainable, as you turn into expertise, would you thoughts updating your weblog with more particulars? It is highly helpful for me. Big thumb up for this blog publish!

  70. Hello there! I know this is kind of off topic but I was wondering if you knew where I could locate a captcha plugin for my comment form? I’m using the same blog platform as yours and I’m having problems finding one? Thanks a lot!

  71. Thanks for your post. One other thing is that if you are promoting your property alone, one of the concerns you need to be mindful of upfront is just how to deal with property inspection records. As a FSBO owner, the key to successfully switching your property in addition to saving money with real estate agent commissions is information. The more you already know, the better your sales effort will probably be. One area that this is particularly significant is reports.

  72. Thanks for your write-up. I also think laptop computers are becoming more and more popular lately, and now are often the only sort of computer employed in a household. The reason is that at the same time they are becoming more and more reasonably priced, their computing power is growing to the point where they’re as strong as desktop computers through just a few years back.

  73. Hi there just wanted to give you a quick heads up. The text in your article seem to be running off the screen in Firefox. I’m not sure if this is a format issue or something to do with browser compatibility but I thought I’d post to let you know. The style and design look great though! Hope you get the problem resolved soon. Thanks

  74. The things i have generally told people is that when you are evaluating a good on the net electronics retail store, there are a few variables that you have to factor in. First and foremost, you should make sure to choose a reputable and also reliable retail store that has picked up great opinions and ratings from other customers and market sector leaders. This will make sure that you are dealing with a well-known store that provides good service and help to its patrons. Many thanks for sharing your ideas on this weblog.

  75. I need to to thank you for this fantastic read!! I certainly enjoyed every little bit of it. I’ve got you bookmarked to look at new stuff you post…

  76. Najnowsza wersja BonBon Blast – Sugar Rush jest 1.1.0, wydany na 15.12.2023. Początkowo był to dodane do naszej bazy na 15.12.2023. W Regulaminie znajduje się również cała strona o ochronie danych, darmowe automaty kasynowe każde zamówienie 1 spowoduje nagrodę w wysokości 1250 dolarów. Producentów automatów ciągle inwestują w rozwój nowych funkcji i elementów, która rozpoczęła się od 2023 roku i cieszy się popularnością wśród brytyjskich graczy. Pomoże Ci to lepiej poznać samą grę, aby wypróbować Kasyno przed grą z prawdziwą gotówką. Region: Global Im bardziej celowo te zadania są obsługiwane, co przyciągnie jeszcze większą liczbę graczy. Typy na wygraną w sugar rush net Entertainment naprawdę wyprodukował tutaj piękno, ale ich Kasyno to coś innego. Korzystaj tylko z usług licencjonowanych kasyn online, z ogromną listą gier.
    https://flintbeat-clone.newspackstaging.com/problemy-z-bet-on-red-casino-jak-sobie-radzic_1752654215/
    powered by ODIBETS W kasynie na żywo Betandreas odbywają się turnieje z miesięcznymi nagrodami o wartości 50 000 zł. Wypłaty w grze Aviator sięgają nawet 1:500. Bonus bez depozytu w Betandreas zwiększa liczbę pierwszych wpisów. Zakłady sportowe Betandreas integrują się z rankingami turniejowymi. W razie potrzeby zwycięzcy odbierają nagrody za pośrednictwem witryny lustrzanej Betandreas. 24 7 na czacie online; e-mail i media społecznościowe Vegasino to dynamicznie rozwijające się kasyno, które oferuje szeroki wybór gier hazardowych online w bezpiecznym i legalnym środowisku. Serwis wyróżnia się intuicyjnym interfejsem, atrakcyjnymi bonusami oraz dużą kolekcją automatów i gier na żywo. Dzięki nowoczesnym rozwiązaniom i wsparciu w języku polskim, Vegasino casino przyciąga zarówno początkujących, jak i doświadczonych graczy, którzy szukają rozrywki na wysokim poziomie.

  77. Uniswap V3’s concentrated liquidity model is a game-changer. Allowing LPs to specify custom price ranges not only boosts capital efficiency by up to 4000×, but also gives traders deeper liquidity where it matters most. Extremely impressive upgrade!

  78. Hi there! This blog post couldn’t be written any better! Going through this article reminds me of my previous roommate! He always kept talking about this. I most certainly will forward this post to him. Pretty sure he will have a good read. Thanks for sharing!

Deja un comentario

Tu dirección de correo electrónico no será publicada. Los campos obligatorios están marcados con *

Scroll al inicio
Resumen de privacidad

Esta web utiliza cookies para que podamos ofrecerte la mejor experiencia de usuario posible. La información de las cookies se almacena en tu navegador y realiza funciones tales como reconocerte cuando vuelves a nuestra web o ayudar a nuestro equipo a comprender qué secciones de la web encuentras más interesantes y útiles.

Puedes revisar nuestra página de privacidad y cookies.