Acto por el Día Mundial de las Enfermedades Raras

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Con motivo de la celebración del Día Mundial de las Enfermedades Raras, el martes 27 de febrero se celebra una jornada científica, organizada por FISABIO y la Dirección General de Salud Pública (DGSP), con la colaboración de la Federación Española de Enfermedades Raras (FEDER).

El evento, que se celebra en el salón de actos de la sede central de FISABIO (edificio de Salud Pública) en horario de 11:30-14:00 horas, contará con la intervención del Dr. Miguel Tomás Vila (Neuropediatra del Hospital La Fe), Dña. Almudena Amaya (Delegada de la Federación de Asociaciones de Enfermedades Raras en la Comunitat Valencia, FEDER), Dra. Rebeca Miñambres (Fundación Sistemas Genómicos), Dr. Óscar Zurriaga (jefe del Área de Enfermedades Raras de FISABIO-Salud Pública), Dña. Lourdes Monge (Directora General de Salud Pública) y D. Eloy Jiménez (Director Gerente de FISABIO).

ORGANIZA: Conselleria de Sanitat.

FEDER.

LUGAR: Salón de Actos de la Dirección General de Salud Pública

Av. de Cataluña, 21
46020 Valencia

FECHA Y HORA: jueves 27 de febrero de 2014, a las 11:30h . La inscripción es gratuita. Aforo limitado.

Inscribirse a la jornada

Descargar programa en PDF

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