Queridas Asociaciones:
Quedan 29 días para el Día Mundial de las Enfermedades Raras y desde FEDER os queremos dar las GRACIAS. Ya hemos recibido la información de algunas asociaciones sobre actividades enmarcadas en el Día Mundial de Enfermedades Raras. Desde FEDER daremos difusión a todas vuestras acciones. Unidos, vamos a lograr que el mes de febrero sea el mes de la esperanza por las personas con enfermedades raras.
Queremos seguir animándoos para que os unáis a esta Campaña de Esperanza. Os contamos cómo hacerlo:
1) MAREA DE LA ESPERANZA –Organiza un acto de Sensibilización por el Día Mundial de las Enfermedades Raras: ¿Tienes un acto programado para el mes de febrero? Te invitamos a que lo enmarques dentro del Día Mundial. Es muy fácil, tan sólo incluye el logotipo del Día Mundial en el material del acto y súmate a la marea de esperanza – Pincha aquí para más información
2) Descarga el material de Campaña: FEDER pone a tu disposición todo el material de campaña de manera Online – ¿Te gustaría que tu firma de correo fuera del Día Mundial? ¿O poner un banner en la web de tu asociación del Día Mundial? Te invitamos a que visites su zona de Descarga de Material de Campaña pulsando aquí.
3) Accede a la web de FEDER y conoce toda la información por el Día Mundial– www.enfermedades-raras.org
4) ¿Tienes alguna duda?¿Quieres contarnos que vas a hacer por el Día Mundial?
Fuente: Dpto. de Comunicación de FEDER – comunicacion@enfermedades-
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